Skip to content

6. How to Help

The point of this book is not to describe a problem. It is to close it. Here is how each reader can help, matched to what the data showed.

If you are a family

You have the right to ask, and the law is on your side.

  1. Tell your school nurse or principal, in writing, that your child has a seizure disorder and ask to set up a Seizure Action Plan.
  2. Have your child's healthcare provider complete the medical parts of the plan.
  3. Ask who the trained staff member is at your child's specific building.
  4. Ask that staff who work with your child be told and given a copy.
  5. Ask for a yearly review.

A copy-paste email and a full walkthrough are in EDAN's family guide.

If you are a teacher or staff member

If you are a school nurse or administrator

The data says the gap is about capacity, so the fix is to make adoption nearly effortless. EDAN provides a free drop-in packet that removes the heavy lifting:

  • A Seizure Action Plan template (with official multilingual versions linked)
  • Drop-in Policy 516 language that cites Minn. Stat. 121A.24
  • A printable seizure first-aid poster for health offices and staff rooms
  • A seizure observation log and a short adoption checklist

Download the free packet (PDF)

The single highest-impact step: post a seizure action plan template on your health-services web page so families can find it.

If you are a student or researcher

  • Replicate or extend the audit (other states have similar laws and no public tracking).
  • Help keep the district finder current by reporting districts that have adopted a plan.
  • Build a MicroSim or translate a chapter into another language.

How EDAN works (the model)

  1. Map where seizure plans are missing, using public data.
  2. Translate clinical and legal material into plain language (this book).
  3. Deliver free, ready-to-use resources to the highest-need districts, and hand the map to partners like the Epilepsy Foundation of Minnesota who can act at scale.

We do not duplicate existing trainings. We point them where they are needed most.

Contact: Rishik Kondadadi, Epilepsy Data & Advocacy Network (EDAN). Corrections and collaboration welcome. Connect on LinkedIn: https://www.linkedin.com/in/krishikk/