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Epilepsy Data & Advocacy Network

Public data, plain language, and free resources for Minnesotans with epilepsy and their families. Student-led, free, and open.

📣 In the news: Minnesota Star Tribune

EDAN founder Rishik Kondadadi's commentary, "If a student had a seizure in the classroom, would your school be prepared?", ran in the Minnesota Star Tribune on July 23, 2026. It makes the case that more Minnesota schools should post seizure action plans where families can actually find them.

New here? Read about EDAN, what we do and why.

About 53,700 Minnesotans live with epilepsy, and most of what goes wrong for them is an information problem: a school with no plan, a pharmacy that closed, a specialist three hours away, a benefit nobody explained. EDAN is a student-led organization that uses public data to find those gaps, translates what it finds into plain language, and puts free resources where they help most. Then we count the people whose lives changed. Everything here is free.

Five initiatives for 2026-27

  1. Seizure-Safe Schools: 7 in 10 Minnesota districts post no findable seizure plan. We are turning that finding into adoptions.
  2. The state's epilepsy data: a 2025 law makes MDH count epilepsy every year. We are its first district-level data partner.
  3. Medication access: shortages, prices, pharmacy deserts, and a bill to cap what epilepsy drugs cost families.
  4. Distance to care: 101 districts are more than 60 miles from a child neurologist. We mapped every one.
  5. SUDEP: about 1,000 Minnesota deaths a year involve seizures and nobody counts SUDEP. Data, a missed benefit, and a reporting law.

Read the full initiatives page, including how we measure impact.

Who this is for

  • Families of children with epilepsy: your child's rights, everyday safety, support, and how to ask a school for a plan.
  • Teachers, school staff, and nurses: clear seizure first aid, the Minnesota law, and a free drop-in packet.
  • Anyone affected by epilepsy who wants plain-language information and recent research, translated.

What makes this "intelligent"

  • Interactive MicroSims let you practice, like the Seizure First Aid Simulator.
  • Quizzes at the end of key chapters check understanding (and can serve as the staff "self-study" the law asks for).
  • A glossary translates clinical terms into plain English.

Start here

Important

This textbook is informational and is not legal or medical advice. A child's seizure care must be set by their licensed healthcare provider. In an emergency, call 911.